What Is Going On
What is going on with me? I did not write or update my blog for a while. As you may have read my previous post, things got a little out of my control.
I was admitted to the hospital and was waiting for some results. Also, the weather was not really in my favor. Also for my “free time”, I was not really in the mood or had the energy to do anything.
The Hospital
As you had read in my previous post, I would be admitted to the hospital. This would take place, very shortly after it was discovered that my left testicle was swollen. Out of precaution, the specialist suggested to remove the testicle. After removing it, they could examine it thoroughly and make sure of what could be the cause.
The admission to the hospital took only two days. On the day that I was admitted, that was also the time for the operation. The next day I already could go home. The wound looked good and I did not had a fever. In the following days, I had to take things easy. No heavy lifting, no long walks, don’t stand too long.
This all went well. No complications. After two weeks, I had to come back for a checkup and I also would get the result of the testicle examination. The good thing was, that it was not cancerous. Thank God. But the one who examined the testicle thought that it maybe could be Erdhein Chester Disieas. Or ECD in short. But it was up to my internist to check this out further.
Something Aditional?
My first thoughts were, Thank God it is not cancerous. That was our first worry. But now I was thinking, “What is Erdheim Chester?” According to my internist, it is something very rare. It is only found by three people every year.
Then I was thinking, “Of Course, this has to happen to me, again”. But my internist was not sure if this was really the case. Because some things did not show up at other checkups, we agreed that he would check things out further and that we would meet again after his holiday. This checkup will be in the last week of September. Until then I can only wait.
No Energy or in The Mood for Much
After the operation and the recovery time at home, I was not really in the mood for much. Not much energy to do anything. Also not really in the mood to do something about building my scale models. The last model that I unboxed and did very little work on, is still untouched on my workbench. Already for almost two months. For some reason, I cannot get myself to do anything with it. Every time I see the models on Facebook, I have the feeling that I also want to build something again. But when I am behind the table, it is gone again.
Also, I noticed, that my energy level is low. Sometimes when walking, then suddenly I am out of breath. The later in the day, the worse it is.
I already heard that every operation that you undergo, it will take away some of your energy. But in time, this should come back again. Not in my case.
I also noticed, that after the operation, my coughing is back again. I tried so many things, but it is still there. The most annoying thing is, that when I am talking. Sometimes I can say a few words before I start coughing. Other times, just one word and there we go again. The lung specialist has no idea what it could be. Because on the last X-ray, the lungs looked fine. For now, I have two inhalers that I need to use twice a day. On some days it goes okay. On other days it is bad.
And for my blog? It also took me a long time before I was in the mood to write this post/update.
Closing
For now, I have no idea what will be next. I only can wait for my next appointment with my internist and see if he has more information about the testicle. Last time he told me that he would send it to the UMC Utrecht. Some kind of University Medical Centre of Utrecht. They could check out things much further and deeper. We hope and wait for that result.
I also hope that the weather will not get so hot anymore. Sorry, I know a lot of people want so nice warm weather. But if the temperature goes higher than 25 degrees, it is not really fun for me anymore. And the last weeks, the temperature sometimes has gone as high as 33 degrees. High temperatures and heart failure, is not a nice combination. The higher the temperature, the less I can do, and the quicker I am out of breath. My heart needs to work too hard to keep the temperature in the body low. So, no energy to do anything else.
I just hope, that my energy and my mood to build my scale model, will come back again. Some days I have no idea what to do with myself. Things are not easy lately. But I hope and pray to overcome this. I don’t want to give up, but it is getting a little depressing. There is so much going on in my mind, that takes time for me to process and learn to live with it.
As always, please take care and be safe. God Bless.
Prayers sent your way Our Brother.
Thank you